4th of July Peeworks

4^th of July

heading to Curly’s

everything went sour

just before we were about to leave

my catheter bag got run over

by my power chair

leaking a big

puddle of pee

onto the rug

under the kitchen table

so Jackie, Micah and Howie

had to move the kitchen table

throw out the carpet pad

take the rug outside

change the catheter bag

sweep and wash the floor

then the van wouldn’t start

we had to jump it

but we were determined

to get to Curly’s

finally we arrived at Curly’s

Curly had rented a ramp

so I could get inside his house

he cleared a section of his living room

so I could go upside down

in my power chair

I was lying there

enjoying Laura rubbing my feet

talking to Stephanie

Curly took me down

drove me to the front door

to watch the kids

light up fireworks

I had bladder spasms

peed all over myself

needed to call for Jackie

who was having a good time

talking to her girlfriends

we had to go

to Curly’s bedroom

where he had made a bathroom station

especially for me

after putting on a dry sarong

cleaning up

it was time for a walk

around the block

to the music

I thought Jackie and I

were going alone

but Laura and Stephanie joined

the girl chatter didn’t stop

nor did my bladder spasms

especially when we ran into friends

I didn’t pee, but the spasms were painful

Jackie ranted,

we post happiness

but our life is ridiculously hard

a total shit show

never enough help

we make ALS look like  fun

but it truly sucks the big one

when we got to the music

they were announcing raffle winners

there were thousands of people

milling about

it was crazy crowded

we still lingered

outside the store

visited with a  partying employee

then a long time customer

who I hadn’t seen yet

she gushed about Soul Shine

especially my Soul Shine speech

I thanked her for her kindness

using my eye gaze computer

the music still not starting

we continued rolling

around the block

we got back to Curly’s

I was having more bladder spasms

penis pain

so back to Curly’s bedroom

while I sat on the commode

the community fireworks began

we rolled onto the back porch

joining our good friends

for the spectacular light show

two green drones following

the action